First meet Selena, she is our granddaughter, but through adoption she is our daughter. We love her to death just like you love your children! When did I first recognize something wrong? From day one! Selena did not like being swaddled, she couldn't stand formula even dripping on her hand. She was not colic, but these things just drove her into a screaming fit. When we started solid food, she preferred vegetables over fruits, she would never even think of touching her food with her hands! She detested shoes on her feet and preferred to go barefoot, yet she was early to learn to read, she taught herself by age 3. It really wasn't until we moved from a tiny house to the large house we live in now before OCD and it's true symptoms even appeared. She did not take well to the change, and still will cry sometimes if we drive by the old house. (right now I need to let you all know she is also on the Autism Spectrum, but that is besides the point of OCD)
Her OCD did not make sense, to us. She showed signs of not liking germs, but yet she did a lot of things that we found just discussing. She couldn't go into the barn, because of the dirt, yet she was thrilled to play in the dirt, and watch all sorts of insects and even hold them. Her diet consisted of only a few dishes, and non of her food could touch, nor any new food could be on the same plate, she always had two plates. You didn't dare enter her space, try to help her cut her meat unless she asked, couldn't help brush her teeth, the list can go on and on.
At a loss as to what to do, we went to seek help, the first psychiatrist we seen was all about medication. We were not sold on that idea so we kept seeking. The second psychiatrist misdiagnosed her, which again we did not agree on and searched for yet another one. The one we have now is excellent, I can't even imagine having him not treat her. He suggested psychologists to work with Selena. The first one had her office in a house, because of that Selena's OCD could not except that. She couldn't go to see this person, because she was suppose to have an office not a house. The second psychologist was more concerned with behavior then the OCD. The third depended totally upon dietary changes, WAIT we were already living on a very restricted diet, how could I restrict it even more? The fourth made Selena feel less then normal. We turned to alternative therapies. I am not stating these things to make any of you feel that therapy will not work, I am just saying that you have to sometimes go on a search until you find the right therapy for your child! Don't ever be afraid to question the therapist, their personality, their method, and how your child might feel.
There are different types of therapy for OCD, one of the most popular is ERP, Exposure Response Prevention. The idea with this therapy is to expose the child with the things that create the OCD, and address the behaviors or rituals and try to find better ways of responding. This may work for some, and at first you might see escalated symptoms or behavioral issues. Some do not respond to this at all. Keep in mind not every treatment is for everyone. Also I believe the therapist MUST be a fit.
Some like to use the book, "Talking Back to OCD" which is a combination of ERP but also tries to explain to the child that OCD is a monster talking to them. This also takes in dietary changes. Depending upon the child this is successful! The child just has to know that monsters are not real and not everything is a monster! We tried this but everything turned into a monster, we had to finally line all the monsters up and kick them out the door and demand that they NOT come back.
For us most traditional therapies made Selena feel "Not Normal!" Though I know many who go through therapy with great success! Again not every therapy model or therapist fits every child!
Medications to treat OCD mostly consist of antidepressants, mild antidepressants given at small doses in hopes to treat the anxiety. I am very anti medication, and found that most of these medications made the OCD worse. Probably in our case due to the Autism we had going on too. Do these medications make our child a zombie? I have to say in mild doses probably not. I don't know about you but I myself have had to take antidepressants before, they didn't make me feel like a zombie. Is it something we want to give our children? That is a personal decision.
Now I want to talk a bit about non conventional therapies. I began my research in this area when I felt I was running into brick walls. Keep in mind we are treating not only OCD but Autism, but I have discovered allowing the child to do something they love or are passionate about with a person who has an understanding of OCD is very effective. As I mentioned earlier, my child had a hard time going into a barn, yet she loved horses. We found a person very passionate in horse whispering and began horse riding lessons. She had to enter the barn, but through her desire to learn to ride horses, and communicating with the horses she now can enter a barn. Not only that it built her confidence and has helped her to communicate with us on the other aspects in her life that bothers her. Any activity that your child enjoys, swimming, martial arts, so long as the teacher is able to understand your child's difficulties and has a willingness to work with you, can be an alternative therapy. Keep in mind they can be expensive and because they are alternative they are not covered under insurance.
I want to emphasize that we all get to a point we feel like we are at a loss, how do we help our child. It happens through trial and error. Sometimes somebody else might know of something that has worked for them, that is a perfect fit for our child. I do not want to create a community like some where all we hear is the negatives, while these are real, but we can ask positive questions, and receive positive support. I will not address all questions myself, I am not a mental health professional, I am first and foremost a mom just like all of you who have walked the same walk. I am more then willing to post to the group questions you ask and encourage others to share their experiences.
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